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National Software Implementation Will Improve Patient Care Through Timely Information on Renal Unit Performance

ETON, UK, 20 May, 2014 – InterSystems, a global leader in software for connected care, today announced that the UK Renal Registry has chosen InterSystems HealthShare® as its new national health informatics platform, gathering data from 84 adult and paediatric renal units, plus satellite haemodialysis units, on over 56,000 patients suffering from stage 5 chronic kidney disease (CKD). HealthShare will allow the Renal Registry to collect near real-time information on patients, helping to improve standards of care across the country through greater data accuracy and more regular, consistent reporting on renal unit performance.

The UK Renal Registry consolidates the collection and analysis of standardised data relating to the incidence, clinical management, and outcome of renal disease to ensure high levels of care at NHS renal units, measured against the standards set by the UK Renal Association. Previously, this information was gathered by disparate IT systems and fed into the UK Renal Registry on a quarterly basis, where it was manually validated, analysed and published in the Registry’s annual report. However, with the implementation of HealthShare, the UK Renal Registry will now:

  • Have a daily data feed
  • Reduce the need for human validation and achieve greater accuracy and consistency of reporting
  • Be able to produce detailed quarterly reports, providing units with greater clarity on their performance
  • More easily track and maintain individual patient records.

Using HealthShare, the Registry will make it easier for clinicians to monitor patient treatment, enabling them to instantly access a patient’s renal data, even if they do not have an existing renal record at that particular treatment centre. This is particularly important for patients moving between transplant and dialysis units and those on holiday, as their treatment can be more accurately tracked and reported, reducing the risk of errors and unnecessary duplicate tests.

Ron Cullen, Director at the UK Renal Registry, said, “The UK Renal Registry is a charitable organisation funded by the NHS and tasked with understanding the care chronic kidney disease patients receive. InterSystems’ international reputation and experience with strategic interoperability in healthcare means it is the ideal partner to update our informatics systems nationally and ready our service for the future.

“InterSystems HealthShare will allow us to gather more data, more accurately. The platform will also help us achieve our ambition to expand the registry to over 1 million CKD sufferers, which will include not just stage 5 patients, but also stages 2 to 4. We also hope to use the platform to build new tools for clinicians and patients, such as a medicine reconciliation function, which will improve patient care as well as providing cost savings for the NHS,” Cullen added.

Steve Garrington, Vice President, International, InterSystems, commented: “We are delighted that the UK Renal Registry has chosen the InterSystems HealthShare health informatics platform to help clinicians capture, share, understand, and act upon their data in a more timely manner. The Registry provides an invaluable service, and HealthShare will support its goal to improve the quality of care for renal patients in Britain.”

The Registry chose HealthShare because of its scalability, the time and cost savings from improved data accuracy, and its ability to provide near real-time data. The implementation is being completed by UK Renal Registry staff.


Stages of Chronic Kidney Disease

  • Stage 1: The eGFR (estimated glomerular filtration rate) shows normal kidney function, but the individual is already known to have some kidney damage or disease.
  • Stage 2: Mildly reduced kidney function, and the individual is already known to have some kidney damage or disease.
  • Stage 3: Moderately reduced kidney function, with or without a known kidney disease. For example, an elderly person with aging kidneys may have reduced kidney function without a specific known kidney disease.
  • Stage 4: Severely reduced kidney function, with or without known kidney disease.
  • Stage 5: Very severely reduced kidney function. This is sometimes called end-stage kidney failure or established renal failure.

About InterSystems
InterSystems develops advanced software technologies that enable breakthroughs. Through its data management, integration, and analytics technologies, InterSystems is dedicated to helping clients and partners succeed by deriving meaning and value from data. InterSystems is the global leader in software for connected healthcare, and industries with extreme performance requirements, including high-volume financial trading, energy, and government, rely on InterSystems software. Founded in 1978, privately held InterSystems is headquartered in Cambridge, Massachusetts (USA), with offices worldwide serving clients and partners in more than 100 countries. For more information, visit

About The Renal Registry UK
The Renal Registry is non-profit making and as part of the Renal Association is registered as a charitable activity by the Charity Commission.

The Registry was established by the Renal Association with support from the Department of Health, the British Association of Paediatric Nephrologists, and the British Transplant Society as a resource for the development of patient care in renal disease. It provides a focus for the collection and analysis of standardised data relating to the incidence, clinical management and outcome of renal disease. The UK Renal Registry monitors indicators of the quality as well as quantity of care, with the aim of improving the standard of care.

The Registry provides data for participating renal units, NHS Trusts, commissioning authorities, regional offices, patient groups and researchers. The development of the Registry is open to influence by all interested parties including clinicians, Trusts, commissioning authorities, patient organisations and researchers.

Editorial Contacts:
Laura Nettley
Good Relations
020 7861 3868

Jan Waterhouse
01753 855 450